Living with Lymphoedema
Here are some links to great articles on the raw truth of living with lymphoedema:
"I have lymphoedema, but here is why most people won't know what I'm talking about"
"Lymphedema and how it has changed my life"
Kathy Bates presents at the NIH Conference on behalf of LE&RN
National Lymphedema Network. NLN Position Paper: The diagnosis and treatment of lymphedema. San Francisco, CA, 2011.
Living Beyond Breast Cancer. A Guide to Understanding Lymphedema (online booklet). LBCC.org, 5th Edition, 2015.
Cancer Action Network, Northern Sydney. Lymphoedema Stories: The Untold Truth (online booklet). Northern Sydney, NSW, 2013.
National Cancer Institute: PDQ® Lymphedema. Bethesda, MD: National Cancer Institute. Date last modified 17/15/2015. Available at http://www.cancer.gov/about-cancer/treatment/side-effects/lymphedema/lymphedema-hp-pdq. Health Professional Version. Accessed 04/22/2015.
National Cancer Institute: PDQ® Lymphedema. Bethesda, MD: National Cancer Institute. Date last modified 05/29/2015. Available at: http://www.cancer.gov/about-cancer/treatment/side-effects/lymphedema/lymphedema-pdq. Patient Version. Accessed 04/22/2015.
Lymphoedema Framework. Best practice for the management of lymphoedema. International consensus. London: MEP Ltd, 2006.
National Breast and Ovarian Cancer Centre. Review of research evidence on secondary lymphoedema: Incidence, prevention, risk factors and treatment. NBOCC, Surry Hills, NSW, 2008.
Armer, J., et al. (2013) Best practice guidelines in assessment, risk reduction, management, and surveillance for post-breast cancer lymphedema Current Breast Cancer Reports 5 (2): 134-144.
Morgan, P., et al. (2005) Health-related quality of life with lymphoedema: a review of the literature International Wound Journal 2 (1): 47-62.
Norman, S., et al. (2008) Lymphedema in breast cancer survivors: incidence, degree, time course, treatment, and symptoms Journal of Clinical Oncology 27 (3): 390-397.
Oremus, M., et al. (2012) Systematic review: conservative treatments for secondary lymphedema BMC Cancer 12 (6): 1-15.
Ridner, S.H. (2013) Pathophysiology of lymphedema Seminars in Clinical Oncology 29 (1): 4-11.
Rockson, S. & Rivera, K. (2008) Estimating the population burden of lymphedema Annals of the New York Academy of Sciences 1131: 147-154
Sierla, R., et al. (2013) Lymphedema following breast cancer: regions affected, severity of symptoms, and benefits of treatment from the patients' perspective Clinical Journal of Oncology Nursing 17 (3): 325-331.
Skobe, M., (2000) Structure, function, and molecular control of the skin lymphatic system The Journal of Investigative Dermatology 5 (1): 14-19.